NC Budget Cuts Could Hurt Children With Rare-Illness, Phenylketonuria
CHARLOTTE, NC-North Carolina's budget shortfall has state leaders looking to cut money that goes to families whose children suffer from a rare illness.
Phenylketonuria or PKU can only be controlled by a costly diet and special metabolic formula. If kids don't receive it, they will become mentally disabled. Families can spend hundreds of dollars a month on special formula and food.
More than 200 kids and adults in North Carolina suffer from PKU and get help from the State in buying the special formula that helps them live an active and healthy life. Kayla Arrowood's son has PKU, she says "why pick on the children, when it's something they need, If it's not something they absolutely need I could understand but it's something they need, or it will affect their brain."
The State pays out more than $283,000 to help PKU families. The budget proposal would cut that funding and only children who are medicaid eligible would receive support.