Charlotte School Accepting Donations To Help Young Girl With Huntington’s Disease
CHARLOTTE, N.C. — Winget Park Elementary will host a Uniform Free Day that will allow students to make a donation to wear an outfit of their choice which will benefit a young girl with Huntington’s Disease (HD).
Uniform Free Day will take place on Friday, February 28 which will directly support Erika Eiger, a Winget Park teacher, and her daughter, Olivia, a former Winget Park student, in their fight against HD.
Olivia was diagnosed with juvenile Huntington’s Disease (JHD) around 2 years ago at about 11 years old.
The disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. HD has been described as having ALS, Parkinson’s and Alzheimer’s all at once.
There is currently no cure or treatment which can halt, slow or reserve the progression of the disease.
Olivia’s father, Jaya Eiger, died from the same disease a little over three months ago. He was diagnosed in 2011.
The family is now looking to purchase a wheelchair for Olivia as she is no longer able to walk for long distances. HD has also caused her head to drift automatically to her left side.
The 13-year-old also uses a feeding tube at night because eating has become very difficult for her. According to GoFundMe, it is very likely that Olivia will not make it to her 21st birthday because of how aggressive her form of JHD is.
“As a school we are hoping to assist her with this and any other support they may need,” WPE said.
The school has suggested a donation of $1 for students to wear a school appropriate outfit of their choice.
There is also a GoFundMe to help the family with food, medical bills and some of Olivia’s basic needs. The goal is to raise $10,000 and currently there is over $4,500 raised.